The National Center for Health Research is the new name for the National Research Center for Women & Families. We promote the health and safety of women, children, and families by using objective, research-based information to encourage new, more effective programs and policies. The Center achieves its mission by gathering and analyzing information and translating that information into clearly presented facts and policy implications that are made widely available to the public, the media, and policy makers. To read more about the mission of the National Center for Health Research, click here.
In The NewsLack of diversity in cancer drug clinical trials may exacerbate racial disparities in mortality rates - A study published in Cancer Epidemiology in April 2014 showed that between 1990 and 2009, the disparity in breast cancer mortality between Black and White women has widened in our country’s most populated states. Like most cancer experts, the authors (Ms. Hunt and her colleagues) conclude that although there have been advances in breast cancer screening, prevention and treatment, these advances have not been equally available to Black and White patients. In July 2014, Dr. Laurén Doamekpor and Dr. Diana Zuckerman of the National Center for Health Research published a response in the same journal, agreeing that access is a problem but pointing out that a lack of racial and ethnic diversity in clinical trials may exacerbate this disparity. Continue readingLawmakers Respond To Advocates’ Concerns About Innovation Initiative - Lawmakers appeared to respond to concerns that the House Energy & Commerce Committee is receiving a one-sided, industry-backed patient perspective as part of its 21st Century Cures Initiative by soliciting comments July 11 from other groups and calling for a balance between the push for more expedited approvals and public health safeguards. Continue reading
What You Need To Know
WE’VE CHANGED OUR NAME FROM NATIONAL RESEARCH CENTER FOR WOMEN & FAMILIES!
We had a wonderful 2014 Foremother and Health Policy Heroes Awards Luncheon at the Mayflower hotel. To view information about this year, and previous years’ Awards Luncheon, click here.
June 12, 2014 Patient Advocacy Workshop
Patient advocates from across the country joined us for a day of training to learn more about the FDA process and how patients can have their voices heard. For more information, contact Maura at firstname.lastname@example.org.
June 13th, 2014 Conference “Evidence for New Medical Products: Implications for Patients and Health Policy”
A video of this groundbreaking conference is now available! To view recordings of the panels or keynote speakers Representative Rosa DeLauro and FDA Commissioner Margaret Hamburg, click here.
Twenty-five major medical groups made recommendations about the kinds of screening and tests you DON’T need. Why pay for tests that won’t help and might even hurt? To learn what they say about certain popular tests, check out this article.
FDA asks if an antidepressant and an epilepsy drug should be taken to reduce hot flashes. We say no.
YAZ, Yasmin, Beyaz, and other drospirenone hormonal birth control pills have been found to put women at an increased risk for serious blood clots. However, the FDA has not taken the pills off the market or demanded a black box warning. To learn the full story, read our article. For more information about all birth control methods, check out our overview.