The National Center for Health Research analyzes and explains the latest research-based information that patients, policy makers, and the public can use to improve their own health and to develop better health programs and policies. The U.S. has the most expensive healthcare in the world, but we don’t live as long as men and women in Europe, Australia, or Canada.
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In The NewsDecision on rare-disease drug sparked major controversy, seen as marking new direction at FDA – The decision to ignore the FDA Advisory Committee and approve the drug based on inadequate evidence is concerning given the shift in political power and passage of the 21st Century Cures bill, leading to deregulation that could be at the expense of patient safety. Continue readingDoctors argue leadless pacemakers deserve broader Medicare coverage – Physicians want wider Medicare coverage for leadless pacemakers, arguing the current reimbursement proposal puts the device out of reach for too many patients. Experts say more research is needed. Continue readingTarget Ends Sale of Dangerous Baby Mattresses, as NJ Considers Statewide Ban – Target makes the decision to end sale of dangerous supplemental baby mattresses in the wake of New Jersey’s imminent decision to ban these mattresses statewide. Dr. Diana Zuckerman, NCHR president, applauds the state for being on the forefront of this important safety issue. Continue readingPotential FDA Head Could Change Drug Approval Process Dramatically – NCHR comments on Trump’s potential pick for FDA head. Continue readingA Major Shortcoming in the Public Health Legacy of the Obama Administration – The Obama Administration has been a strong voice for many public health issues, including tobacco control, childhood obesity, and reproductive health. The Affordable Care Act is also a major accomplishment. But, under the same administration, the FDA caved into political pressure by approving medical products based on lower standards of scientific evidence. What will happen going forward? Continue reading
Our next Introductory Patient Advocacy Workshop will be June 2-3, 2017. Find out how to apply here.
URGENT: Contact your Member of Congress Now!
Do you think that health insurance companies should be able to refuse coverage for people with pre-existing medical conditions such as cancer or heart disease, or complications from a defective implant? That is what will happen if Congress repeals the Affordable Care Act without replacing it with something at least as good. If you want the Affordable Care Act to stay in place until it is replaced, please take 5 minutes to make this call.
What You Need To Know
Want to make some positive changes this year? Here’s how to have a healthy and happy new year.
Why do so many cancer patients take medications that drain their energy and joy of living but don’t benefit them? The answer: since 2008, FDA has not required new cancer drugs to prove they help patients live longer. After the drugs were approved, 18 were found to not extend patients’ lives at all, and only one of the drugs is proven to improve patients’ quality of life. But these ineffective cancer drugs cost just as much.
Find out about our #LetterstoAnnie project. What killed Annie, a healthy young woman? How can you protect yourself or your daughter? We will unravel the mystery through letters from Annie’s mom to her daughter: www.letterstoannie.org
If you or a loved one have been harmed by a birth control pill or implant, click here.